Genetic databases : socio-ethical issues in the collection and use of DNA / edited by Richard Tutton and Oonagh Corrigan. - London ; New York : Routledge, 2004. - viii, 211 p. ; 24 cm.

Includes bibliographical references and index.

Introduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan -- Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton -- Blood donation for genetic research : what can we learn from donors' narratives? / Helen Busby -- Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr -- Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan -- Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer -- Abandoning informed consent : the case of genetic research in population collections / Jane Kaye -- Children's participation in genetic epidemiology : consent and control / Emma Williamson ... [et al.] -- 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon -- Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis.

0415316790 9780415316798 0415316804 (pbk.) 9780415316804 (pbk.)

2003066779


DNA.
Nucleotide sequence--Databases.
Amino acid sequence--Databases.
Genetics--Data processing.
Databases--Citizen participation.
Bioinformatics.
Medical ethics.

QH441.2 / .G45 2004